Evaluation of mechanical low back pain and quality of life in caregivers of individuals with neuromuscular diseases
DOI:
https://doi.org/10.5281/zenodo.13208365Anahtar Kelimeler:
Caregiver burden, low back pain, neuromuscular diseases, paediatric patient, quality of lifeÖzet
Objective: The aim of this study was to identify variables influencing mechanical low back pain and quality of life in caregivers of children with neuromuscular diseases, and to assess the association between caregivers' mechanical low back pain and quality of life.
Method: This cross-sectional study was conducted in the Muscular Diseases Center of an institute. Between February and July 2019, caregivers of the Muscle Disease Unit were included in the study. Caregivers' Visual Analogue Score (VAS), Functional Ambulation Scale (FAS) and pain treatment status, Revised Oswestry Low Back Pain Disability Questionnaire (ODI), and SF-36 Quality of Life Scale were evaluated using chi-squared and correlation analysis.
Results: The prevalence of low back pain among caregivers was 81.5% (n=135). The participants' VAS and Oswestry scores were 6.1 and 27.4, respectively. Dependency increased with age and duration of diagnosis. There was a positive correlation between caregivers' VAS and ODI scores. SF-36 scores were lower than average.
Conclusion: Neuromuscular diseases are chronic, progressive, often incurable and cause significant problems for paediatric patients and caregivers. As caregiver burden and back pain increase, caregivers' quality of life decreases. Multidisciplinary teams should be established to help caregiver cope with the difficulties.
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Telif Hakkı (c) 2024 Journal of Infant, Child and Adolescent Health
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